Monday, December 15, 2014

Post-op appointment and stuff

First, let me tell you about my hospital stay. I loved all my nurses and the physical therapist. I received a fleece tie blanket in recovery (shown in picture) and they even gave lamb and Rudy, two stuffed pals I've had forever and taken to each surgery (don't judge) identification bracelets!
 On another level there was a large Christmas tree with a box in front of it with little rolled messages and pictures made by the children that were staying or had stayed there. I had received some of these messages and even got to write some. It's nice being encouraged by just a few scribbled words and a picture and being able to return the love by doing the same thing and keep the encouragement and love continuous. Now that's child like faith.

I never really had any rough moments in the hospital once settled. The only trouble I had was in recovery. I was sleeping, next thing I know two machines and something else is beeping really loud and one nurse grabbed me by the shoulders shook me yelling "Taylor, wake up!" I took a look at her but was out again, she did it again and this time there's three other nurses around me and I have an oxygen mask on. I was freaking out, I didn't know what was happening to me! I was supposed to be out of recovery and in my room by 12:30, but because of this issue, I wasn't in my room until after 4:00. But I'm alive now, it's all okay. :)

I shouldn't forget to mention the giant giraffe my dad got me to out do Stephan's get well present for me. 

I've been home for over a week now and the first few days were hard, and nights were bad. I have some bruises on my back on a bad one on my arm. I have a hard time bending over and can't get comfortable, but I'm adjusting and it's getting better. 

I had my check up with the scoliosis doctor and appointment with the neurologist Monday. Each appointment went well. My bandage was taken off and we saw my incision for the first time, it's longer than I thought it'd be. It's feels really weird, but it feels better to have the bandage off. All is good and I'll see him again in three months. My neurology appointment was also good and I'll see him in six months. 
My incision is 7 inches long and scary...
Right in line with my scar from tethered cord release from last April.

I missed being in church Sunday and with the 1&2 graders for Sunday school. I received cards from the classes which did cheer me up! Thank you! 

More pictures to come from the hospital stay. Thanks for all your thoughts and prayers! 

Tuesday, December 2, 2014

About Spinal Fusion

I will be having my spinal fusion surgery for scoliosis this Thursday, December 4th at Cardinal Glennon Children's Hospital in St. Louis, MO. We will be going over tomorrow morning to do a little Christmas shopping then relax in the hotel in the evening to rest up for Thursday. I have to be in the hospital by 5:30 AM and my surgery is at 7 AM. 

Right now we are all sick with sinus infections and Nay has bronchitis. I will still be able to have my surgery unless I'm coughing a lot and have chest congestion. 

So what is this surgery for? I was diagnosed with scoliosis (spine curvature) in 2008. I was told I was about done growing and the curvature shouldn't get any worse, and there was no need for treatment. But now, my curvature has changed very much and is beyond the point of being corrected by a brace.  When I first met with my scoliosis doctor, he actually said I should have the surgery, especially since I have knee and hip pain. What they'll be doing Thursday is a spinal fusion, which in my case consists of two titanium rods, multiple screws, and the fusion of five of my vertebrae T11-L3.



I will be in the hospital for at least four to five days, depending on how I'm feeling. I am quite nervous not just about the surgery but about my family and I getting rid of our sicknesses. I would appreciate your prayers greatly!

Monday, November 24, 2014

On my way to St. Louis

I'm on my way to SSM Cardinal Glennon Children's Hospital of St. Louis, MO for my pre-op appointment for the surgery I will be having next Thursday, December 4th. My appointment today is at 1:45. I will be finding out the details of my surgery and recovery time and so forth. 

Thursday, April 3, 2014

A year ago today- first time in WI

It's been a year since my first appointment with Dr. Heffez. It's hard to believe everything that's happened since! Two surgeries and many appointments later, I'm still struggling with doctors and and symptoms (thankfully, not to the extent of what I had before my decompression). I was released from Dr. Heffez because there is nothing else he can do for me, for he is only a chiari specialist/ neurosurgeon and says there's no need to see me unless I get significantly worse.

I have an appointment for a tilt table test! It's scheduled on the 14th of May in the morning. For more information on a what a tilt table test is, go to these links:
http://youtu.be/5H5FZTAic7c
Tilt Table Test Information - The Mount Sinai Hospital

Sunday, March 30, 2014

A year ago today...

A year ago today, it was Easter Sunday and I remember having an awful headache. It was during church service that I had 7 seizures, then started having trouble breathing. I was taken by ambulance to St. Anthony's in Effingham and when the doctors said there was nothing they could do for me, I was, again, taken by ambulance to Carle Hospital in Champaign. The emergency room was just awful. I was one of many patients in the hallway... I remember being in the gurney line-up, waiting next to a man who was yelling awful things to the nurses and I wanted to get away from him. Later on my head started hurting really bad and I went into more seizures, my mom got a nurses attention and tried to get her help, but all she did was say, "Yes, she's having a seizure." At some point during our wait I started crying and taking all the monitors off of myself because I wanted to go, it was just a few minutes later the hospital pediatrician came to the emergency room to basically ask if I had emotional issues, I remember him asking me if I was okay a lot of times.... I stayed three days at Carle had a 24 hour video EEG and they saw I had non-epileptic seizures. After finding out about that, they recommended I see a psychiatrist, "...because everybody needs somebody to talk to." After being released from the hospital, we left for Wisconsin and found a hotel so we could get some sleep, because I had an appointment the next morning with Dr. Heffez at the Chiari Center of Wisconsin! (I'll write a post about that Thursday)

I had a total of at least 12 seizures that Sunday. I am now seizure free and will be getting my drivers license soon! There are many things I'm going to do this year that I couldn't do last year. I'm very excited for the blessings God has has in store for me and my family this year.

Isaiah 40:29-31 (NIV)

29 "He gives strength to the weary and increases the power of the weak. 30 Even youths grow tired and weary, and young men stumble and fall; 31 but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint."

Thursday, March 27, 2014

Breakfast at Taco Bell!


Waffle tacos!!
We woke up at 6am and got here at 7 and were the first to order breakfast at Taco Bell!

Tuesday, March 25, 2014

Getting Ready For Spring

Goodness, am I ready for spring! I know spring has actually arrived I'm ready for it's weather to stick around. Bouncing back from 25 to 65 and snow to rain is wearing me out and tends to bring on headaches, so I'm hoping this week's snowfall will be the last and warm weather will be here soon. To Stay.

This last week (while it was still warm out) we went outside different times to check the garden. This is what we found-

GREEN!!!! This iris plant is ready for spring!

We've got irises growing already, along with a few other plants. My
onion chives in the herb garden are growing as well! 

About 3 inches deep! 
Our seed for the vegetable garden has arrived! I can barely wait for the day I can start working in the garden. Stephan trimmed the bushes and plants in the flower gardens and we'll be raking next time warm weather comes along! A couple weeks ago I was walking around in the garden, I literally starting to sink because the ground was so soft. My footprints still remain.


It's been about 7 months since my brain surgery. I haven't had any seizures since my surgery, expect for the one I had soon after, which was kinda like my nerves waking up. My hair is about 3 inches long now and is very annoying! Bobbie pins don't really work, clips are okay, but this new hair never wants to stay up. I had my hair in a vintage updo today since I was wearing one of my long dresses.



Psalm 37:3

"Trust in the Lord, and do good; dwell in the land and befriend faithfulness."