Monday, November 24, 2014

On my way to St. Louis

I'm on my way to SSM Cardinal Glennon Children's Hospital of St. Louis, MO for my pre-op appointment for the surgery I will be having next Thursday, December 4th. My appointment today is at 1:45. I will be finding out the details of my surgery and recovery time and so forth. 

Thursday, April 3, 2014

A year ago today- first time in WI

It's been a year since my first appointment with Dr. Heffez. It's hard to believe everything that's happened since! Two surgeries and many appointments later, I'm still struggling with doctors and and symptoms (thankfully, not to the extent of what I had before my decompression). I was released from Dr. Heffez because there is nothing else he can do for me, for he is only a chiari specialist/ neurosurgeon and says there's no need to see me unless I get significantly worse.

I have an appointment for a tilt table test! It's scheduled on the 14th of May in the morning. For more information on a what a tilt table test is, go to these links:
Tilt Table Test Information - The Mount Sinai Hospital

Sunday, March 30, 2014

A year ago today...

A year ago today, it was Easter Sunday and I remember having an awful headache. It was during church service that I had 7 seizures, then started having trouble breathing. I was taken by ambulance to St. Anthony's in Effingham and when the doctors said there was nothing they could do for me, I was, again, taken by ambulance to Carle Hospital in Champaign. The emergency room was just awful. I was one of many patients in the hallway... I remember being in the gurney line-up, waiting next to a man who was yelling awful things to the nurses and I wanted to get away from him. Later on my head started hurting really bad and I went into more seizures, my mom got a nurses attention and tried to get her help, but all she did was say, "Yes, she's having a seizure." At some point during our wait I started crying and taking all the monitors off of myself because I wanted to go, it was just a few minutes later the hospital pediatrician came to the emergency room to basically ask if I had emotional issues, I remember him asking me if I was okay a lot of times.... I stayed three days at Carle had a 24 hour video EEG and they saw I had non-epileptic seizures. After finding out about that, they recommended I see a psychiatrist, "...because everybody needs somebody to talk to." After being released from the hospital, we left for Wisconsin and found a hotel so we could get some sleep, because I had an appointment the next morning with Dr. Heffez at the Chiari Center of Wisconsin! (I'll write a post about that Thursday)

I had a total of at least 12 seizures that Sunday. I am now seizure free and will be getting my drivers license soon! There are many things I'm going to do this year that I couldn't do last year. I'm very excited for the blessings God has has in store for me and my family this year.

Isaiah 40:29-31 (NIV)

29 "He gives strength to the weary and increases the power of the weak. 30 Even youths grow tired and weary, and young men stumble and fall; 31 but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint."

Thursday, March 27, 2014

Breakfast at Taco Bell!

Waffle tacos!!
We woke up at 6am and got here at 7 and were the first to order breakfast at Taco Bell!

Tuesday, March 25, 2014

Getting Ready For Spring

Goodness, am I ready for spring! I know spring has actually arrived I'm ready for it's weather to stick around. Bouncing back from 25 to 65 and snow to rain is wearing me out and tends to bring on headaches, so I'm hoping this week's snowfall will be the last and warm weather will be here soon. To Stay.

This last week (while it was still warm out) we went outside different times to check the garden. This is what we found-

GREEN!!!! This iris plant is ready for spring!

We've got irises growing already, along with a few other plants. My
onion chives in the herb garden are growing as well! 

About 3 inches deep! 
Our seed for the vegetable garden has arrived! I can barely wait for the day I can start working in the garden. Stephan trimmed the bushes and plants in the flower gardens and we'll be raking next time warm weather comes along! A couple weeks ago I was walking around in the garden, I literally starting to sink because the ground was so soft. My footprints still remain.

It's been about 7 months since my brain surgery. I haven't had any seizures since my surgery, expect for the one I had soon after, which was kinda like my nerves waking up. My hair is about 3 inches long now and is very annoying! Bobbie pins don't really work, clips are okay, but this new hair never wants to stay up. I had my hair in a vintage updo today since I was wearing one of my long dresses.

Psalm 37:3

"Trust in the Lord, and do good; dwell in the land and befriend faithfulness."

Wednesday, March 12, 2014

Getting stronger!!!

In January I started physical therapy in Casey and was told I barely had any strength. I could barely lift a 2lb weight or do any of the exercises and had physical therapy three times a week because of how weak I was. I am very happy to say that Friday, March 7th, was my last day of physical therapy! I'm continuing my exercises at home so that I can continue to regain strength. I am now strong enough that I'm able to do 30 push-ups! (15 girl, 15 regular) I built up my strength for those my doing 60 wall push-ups. 

Even though I'm getting stronger, I still have bad headaches and nausea. I've had I bad headache for almost a week now probably because of all the weather changes. 

As of right now, it is 7 days, 23 hours, 19 minutes, and 4 seconds until spring! (Countdown on We've ordered the seed for our vegetable garden and I ordered our chickens yesterday! I'm looking forward to warmer weather sticking around.

Saturday, January 4, 2014

Happy new year!

First off, I apologize for my lack of entries on my blog. I've had a hard time keeping up with the holidays and the past two months have been stressful!

In November, I saw a cardiologist in SSM Cardinal Glennon Hospital in St. Louis, MO. I had a echocardiogram, and EKG, had my blood pressure taken several times, and was sent home with a heart monitor that I had to wear for 24 hours. The doctor said I have low blood pressure and high heart rate at times.

In December, at the same hospital, I saw the neurologist. He was very thorough in the examination and he prescribed medicines for my headaches which I believe have been helping. I have a tilt table test scheduled in St. Louis in February, and I'll see my neurologist and cardiologist every six months unless there's changes. 

Soon I will be starting physical therapy to help me regain my strength. Gods got great things planned for me this year, I'm gonna be ready for it, spiritually and physically!

I pray everyone keeps safe and warm these next couple weeks as we face blizzard conditions. Stay inside!